Hey dolls!
I am so happy to share our Christmas pictures with you all today. I know it is February, but we didn’t we a chance to shoot these until January since we were at MUSC until five days before Christmas. It was the best present to be able to get her well and back home and I am so grateful for that. I hope you all enjoy these pictures as much as I do.
Photos by: Hannah Decossas Photography
First off I have to say that I can’t believe that six months has gone by since becoming a mommy. It is the best thing ever. I never knew I could love someone so much and honestly you really don’t know the feeling until it happens.
As you know Lexi was hospitalized for almost three months and now we have been home for a month and it has been amazing. She is a little behind but that is expected due to her chromosome deletion and because she was in fact in the hospital for so long. She is now starting to reach some of her milestones such as turning her head from side to side and following things. She is kicking a lot and loves to put her hands together. Also, sometimes she hold things with both hands and still loves her carrot rattle.
I am absolutely in love with this girl and so happy to have her home and see her grow.
Dress: Burberry ( Love this one and this one ) | Hairband: Carter’s
Photos by: Hannah Decossas Photography
I am sorry that it has been so long since the last blog post, but as you read in the previous post Lexi has been in MUSC for heart surgery. It was a long road and a few weeks of recovery but we are finally home! She first got admitted into the hospital on October 10th and discharged on December 20th. It has been such a long 72 days, but we got through it as a family. The best part was that we were home in time for Christmas. On another note we recently took her for a follow up with her cardiologist and he is so happy with how her heart is looking. His exact words were “her heart is working like yours and mine”. You have no idea how happy I was to hear that!
I also want to take the time to thank you all for your kind words and prayers. It has meant a lot to our family. Thank you for following along on this journey.
As you all may know by now my daughter is a Special Needs child. She was born with a Chromosome 5 deletion and a large VSD in heart. She has been hospitalized now for 2 months and is now recovering from heart surgery.
She was first admitted into GHS for reflux issues and had a surgery done called a Nisen (wrapping stomach to the esophagus) to correct that. After 2 days she had trouble breathing and the doctors had to put a breathing tube down her windpipe to keep her breathing. After a CT, they saw that her heart had enlarged and was compressing her left lung. That is when it was decided that she would be going to MUSC for heart surgery.
It is tough as a mom to see my baby go through all of that but it needed to be done. She had her surgery on November 29th and is recovering very well! A post about that is coming soon! Thank you to everyone for following along on our journey.
Rattles and Pearls 